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Multiple sclerosis multidisciplinary care : a national survey and lessons for the global community

Liesbeth Van Hijfte, Melissa Cambron (UGent) , Brigitte Capron, Bernard Dachy, Danny Decoo, Dominique Dive, Bénédicte Dubois, Souraya El Sankari, Frederic London, Gaetano Perrotta, et al.
(2024) MULTIPLE SCLEROSIS AND RELATED DISORDERS. 85.
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Abstract
Background Access to, standardization and reimbursement of multidisciplinary care for people with MS (PwMS) is lacking in many countries. Therefore, this study aims to describe the current multidisciplinary care for people with MS (PwMS) in Belgium and identify benefits, needs and future perspectives Methods A survey for PwMS questioned various aspects of MS and viewpoints on care. For MS nurses (MSN) and neurologists, employment, education, job-content, care organization and perspectives were inquired. Descriptive and univariate statistics were performed Results The PwMS survey comprised 916 respondents with a mean age of 46±12.7 years and 75,4 % of the respondents being female. The majority of the participants had relapsing remitting MS (60.8 %) and the mean patient determined disease steps (PDDS) was 2.0 (IQR=3). 65.3 % and 60.4 % of the PwMS reported having access to a multidisciplinary team (MDT) or MSN. Access to an MSN was associated with more frequent disease modifying treatment (p=.015), spasticity (p=.042) and gait treatment (p=.035), but also more physiotherapy (p=.004), driver's license adjustment (p<.001) and a higher employment rate (p=.004). MDT access was associated with more frequent symptomatic bladder treatment (p=.047), higher physiotherapy rate (p<.001), higher work- (p=.002), insurance- (p<.001) and home support measures (p=.019). PwMS without an available MDT more often indicated that MS care needs improvement (p<.001). MSN's (n = 22) were mainly funded through various budgets, including hospital and neurology practice budgets. Finally, 69 % and 75 % neurologists (n = 62) working without an MSN or MDT stated a need of such support and 61 % agreed that MDT's should be organized at hospital-network level Conclusion MDT and MSN availability may enhance medical and socio-economic support for PwMS. Guidelines, alignment and reimbursement are needed.
Keywords
multiple sclerosis, Healthcare, Multidisciplinary, disease modifying treatment, Quality of life

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MLA
Van Hijfte, Liesbeth, et al. “Multiple Sclerosis Multidisciplinary Care : A National Survey and Lessons for the Global Community.” MULTIPLE SCLEROSIS AND RELATED DISORDERS, vol. 85, 2024, doi:10.1016/j.msard.2024.105540.
APA
Van Hijfte, L., Cambron, M., Capron, B., Dachy, B., Decoo, D., Dive, D., … for Multiple Sclerosis (BSGMS), B. S. G. (2024). Multiple sclerosis multidisciplinary care : a national survey and lessons for the global community. MULTIPLE SCLEROSIS AND RELATED DISORDERS, 85. https://doi.org/10.1016/j.msard.2024.105540
Chicago author-date
Van Hijfte, Liesbeth, Melissa Cambron, Brigitte Capron, Bernard Dachy, Danny Decoo, Dominique Dive, Bénédicte Dubois, et al. 2024. “Multiple Sclerosis Multidisciplinary Care : A National Survey and Lessons for the Global Community.” MULTIPLE SCLEROSIS AND RELATED DISORDERS 85. https://doi.org/10.1016/j.msard.2024.105540.
Chicago author-date (all authors)
Van Hijfte, Liesbeth, Melissa Cambron, Brigitte Capron, Bernard Dachy, Danny Decoo, Dominique Dive, Bénédicte Dubois, Souraya El Sankari, Frederic London, Gaetano Perrotta, Veronica Popescu, Vincent Van Pesch, Bart Van Wijmeersch, Barbara Willekens, Guy Laureys, and Belgian Study Group for Multiple Sclerosis (BSGMS). 2024. “Multiple Sclerosis Multidisciplinary Care : A National Survey and Lessons for the Global Community.” MULTIPLE SCLEROSIS AND RELATED DISORDERS 85. doi:10.1016/j.msard.2024.105540.
Vancouver
1.
Van Hijfte L, Cambron M, Capron B, Dachy B, Decoo D, Dive D, et al. Multiple sclerosis multidisciplinary care : a national survey and lessons for the global community. MULTIPLE SCLEROSIS AND RELATED DISORDERS. 2024;85.
IEEE
[1]
L. Van Hijfte et al., “Multiple sclerosis multidisciplinary care : a national survey and lessons for the global community,” MULTIPLE SCLEROSIS AND RELATED DISORDERS, vol. 85, 2024.
@article{01HSBDVSDB719K9Z40SDF6B9S1,
  abstract     = {{Background
Access to, standardization and reimbursement of multidisciplinary care for people with MS (PwMS) is lacking in many countries. Therefore, this study aims to describe the current multidisciplinary care for people with MS (PwMS) in Belgium and identify benefits, needs and future perspectives

Methods
A survey for PwMS questioned various aspects of MS and viewpoints on care. For MS nurses (MSN) and neurologists, employment, education, job-content, care organization and perspectives were inquired. Descriptive and univariate statistics were performed

Results
The PwMS survey comprised 916 respondents with a mean age of 46±12.7 years and 75,4 % of the respondents being female. The majority of the participants had relapsing remitting MS (60.8 %) and the mean patient determined disease steps (PDDS) was 2.0 (IQR=3). 65.3 % and 60.4 % of the PwMS reported having access to a multidisciplinary team (MDT) or MSN. Access to an MSN was associated with more frequent disease modifying treatment (p=.015), spasticity (p=.042) and gait treatment (p=.035), but also more physiotherapy (p=.004), driver's license adjustment (p<.001) and a higher employment rate (p=.004). MDT access was associated with more frequent symptomatic bladder treatment (p=.047), higher physiotherapy rate (p<.001), higher work- (p=.002), insurance- (p<.001) and home support measures (p=.019). PwMS without an available MDT more often indicated that MS care needs improvement (p<.001). MSN's (n = 22) were mainly funded through various budgets, including hospital and neurology practice budgets. Finally, 69 % and 75 % neurologists (n = 62) working without an MSN or MDT stated a need of such support and 61 % agreed that MDT's should be organized at hospital-network level

Conclusion
MDT and MSN availability may enhance medical and socio-economic support for PwMS. Guidelines, alignment and reimbursement are needed.}},
  articleno    = {{105540}},
  author       = {{Van Hijfte, Liesbeth and Cambron, Melissa and Capron, Brigitte and Dachy, Bernard and Decoo, Danny and Dive, Dominique and Dubois, Bénédicte and El Sankari, Souraya and London, Frederic and Perrotta, Gaetano and Popescu, Veronica and Van Pesch, Vincent and Van Wijmeersch, Bart and Willekens, Barbara and Laureys, Guy and for Multiple Sclerosis (BSGMS), Belgian Study Group}},
  issn         = {{2211-0348}},
  journal      = {{MULTIPLE SCLEROSIS AND RELATED DISORDERS}},
  keywords     = {{multiple sclerosis,Healthcare,Multidisciplinary,disease modifying treatment,Quality of life}},
  language     = {{eng}},
  pages        = {{7}},
  title        = {{Multiple sclerosis multidisciplinary care : a national survey and lessons for the global community}},
  url          = {{http://doi.org/10.1016/j.msard.2024.105540}},
  volume       = {{85}},
  year         = {{2024}},
}
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