Patient reported outcomes in brachial plexus birth injury : results from the iPLUTO world‐wide consensus survey
- Author
- Hazel Brown, Ruth Van der Looven (UGent) , Emily S. Ho and Willem Pondaag
- Organization
- Abstract
- Purpose: Brachial plexus birth injuries (BPBI) can have lifelong effects on the development and functional use of the upper extremity. Currently there is no agreement with regards to what patient-reported outcome (PRO) measures should be used. Therefore, the ability to compare the effects of treatment between individuals and institutions is challenging. This study aimed to achieve consensus among clinicians on the use of PRO measures within this patient group to allow for improved comparison of treatments and outcomes in the future.Materials and Methods: Online, a 3 round Delphi survey was completed by 35 international multi-disciplinary specialist centers.Results: All respondents (100%) agreed that PRO measures are useful for clinical evaluation and patient treatment. None of the outcome measures scored >75% agreement for ability to assess responsiveness and current state in children with BPBI as most outcome measures were judged as not specific for BPBI. Additionally, participant centers were asked their perspective on the best available PRO option for each of the 3 categories: functional use of the upper limb, quality of life and pain. This resulted in endorsement by the participant centers of the Brachial Plexus Outcome Measure - Self-Evaluation, the Pediatric Quality of Life Inventory, and Visual Analogue Scale/Brief Pain Inventory respectively.Conclusion: International specialists in BPBI agree that PRO measures are important to use both clinically and in research in children aged 5 years and above.
- Keywords
- Rehabilitation, survey, consensus methods, clinical utility, patient reported outcome measures, neonatal brachial plexus palsy (MESH), Brachial plexus birth injuries, QUALITY-OF-LIFE, CHILDREN, ADOLESCENTS, PALSY
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Citation
Please use this url to cite or link to this publication: http://hdl.handle.net/1854/LU-01HQD4K2FHH4YDAH5AZD87TWHD
- MLA
- Brown, Hazel, et al. “Patient Reported Outcomes in Brachial Plexus Birth Injury : Results from the IPLUTO World‐wide Consensus Survey.” DISABILITY AND REHABILITATION, vol. 46, no. 22, 2024, pp. 5213–19, doi:10.1080/09638288.2023.2298708.
- APA
- Brown, H., Van der Looven, R., Ho, E. S., & Pondaag, W. (2024). Patient reported outcomes in brachial plexus birth injury : results from the iPLUTO world‐wide consensus survey. DISABILITY AND REHABILITATION, 46(22), 5213–5219. https://doi.org/10.1080/09638288.2023.2298708
- Chicago author-date
- Brown, Hazel, Ruth Van der Looven, Emily S. Ho, and Willem Pondaag. 2024. “Patient Reported Outcomes in Brachial Plexus Birth Injury : Results from the IPLUTO World‐wide Consensus Survey.” DISABILITY AND REHABILITATION 46 (22): 5213–19. https://doi.org/10.1080/09638288.2023.2298708.
- Chicago author-date (all authors)
- Brown, Hazel, Ruth Van der Looven, Emily S. Ho, and Willem Pondaag. 2024. “Patient Reported Outcomes in Brachial Plexus Birth Injury : Results from the IPLUTO World‐wide Consensus Survey.” DISABILITY AND REHABILITATION 46 (22): 5213–5219. doi:10.1080/09638288.2023.2298708.
- Vancouver
- 1.Brown H, Van der Looven R, Ho ES, Pondaag W. Patient reported outcomes in brachial plexus birth injury : results from the iPLUTO world‐wide consensus survey. DISABILITY AND REHABILITATION. 2024;46(22):5213–9.
- IEEE
- [1]H. Brown, R. Van der Looven, E. S. Ho, and W. Pondaag, “Patient reported outcomes in brachial plexus birth injury : results from the iPLUTO world‐wide consensus survey,” DISABILITY AND REHABILITATION, vol. 46, no. 22, pp. 5213–5219, 2024.
@article{01HQD4K2FHH4YDAH5AZD87TWHD,
abstract = {{Purpose: Brachial plexus birth injuries (BPBI) can have lifelong effects on the development and functional use of the upper extremity. Currently there is no agreement with regards to what patient-reported outcome (PRO) measures should be used. Therefore, the ability to compare the effects of treatment between individuals and institutions is challenging. This study aimed to achieve consensus among clinicians on the use of PRO measures within this patient group to allow for improved comparison of treatments and outcomes in the future.Materials and Methods: Online, a 3 round Delphi survey was completed by 35 international multi-disciplinary specialist centers.Results: All respondents (100%) agreed that PRO measures are useful for clinical evaluation and patient treatment. None of the outcome measures scored >75% agreement for ability to assess responsiveness and current state in children with BPBI as most outcome measures were judged as not specific for BPBI. Additionally, participant centers were asked their perspective on the best available PRO option for each of the 3 categories: functional use of the upper limb, quality of life and pain. This resulted in endorsement by the participant centers of the Brachial Plexus Outcome Measure - Self-Evaluation, the Pediatric Quality of Life Inventory, and Visual Analogue Scale/Brief Pain Inventory respectively.Conclusion: International specialists in BPBI agree that PRO measures are important to use both clinically and in research in children aged 5 years and above.}},
author = {{Brown, Hazel and Van der Looven, Ruth and Ho, Emily S. and Pondaag, Willem}},
issn = {{0963-8288}},
journal = {{DISABILITY AND REHABILITATION}},
keywords = {{Rehabilitation,survey,consensus methods,clinical utility,patient reported outcome measures,neonatal brachial plexus palsy (MESH),Brachial plexus birth injuries,QUALITY-OF-LIFE,CHILDREN,ADOLESCENTS,PALSY}},
language = {{eng}},
number = {{22}},
pages = {{5213--5219}},
title = {{Patient reported outcomes in brachial plexus birth injury : results from the iPLUTO world‐wide consensus survey}},
url = {{http://doi.org/10.1080/09638288.2023.2298708}},
volume = {{46}},
year = {{2024}},
}
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