@article{01HDDHZHF6JZVZJ3TNPQKA6XZ5,
  abstract     = {{Abstract
Objective
To evaluate the effectiveness of the transition program for adolescents with congenital heart disease (CHD) ‘Transition With a Heart’ (TWAH) on disease-related knowledge, quality of life (QoL), transition experiences, and gaps in follow-up.

Methods
A study with pre-posttest and control group (post-test) using consecutive sampling, including adolescents with moderate to severely complex CHD, without intellectual disability, aged≥ 12 y, and parents. After weighting, t-tests were performed. A multivariable regression analysis explored the outcomes’ determinants.

Results
In the intervention group, 28 adolescents and 25 parents were included, and 53 adolescents and 18 parents as controls. Adolescents’ knowledge significantly increased after completing TWAH (from 59.8% to 75.7%;p < 0.01). Their knowledge was positively correlated with TWAH (β = +13.3;p < 0.01). Adolescents’ transition experiences were also positively related to TWAH (general experience: β = +5.5;p < 0.01; transfer satisfaction: β = +0.8; p < 0.01). Adolescents’ QoL was mainly determined by CHD complexity and not by TWAH. No one showed gaps in follow-up. TWAH was not associated with parents’ transition experiences.

Conclusion
Implementing TWAH substantially improved adolescents’ disease-related knowledge and transition experiences.

Practice implications
The results regarding transition experiences need to be confirmed by further research. The TWAH design with the person-tailored educational program, skills training, and the transition coordinator can be used in settings with other chronic diseases.}},
  articleno    = {{108028}},
  author       = {{de Hosson, Michèle and De Groote, Katya and Van Hecke, Ann and De Wolf, Daniël and Vandekerckhove, Kristof and Muiño Mosquera, Laura and Panzer, Joseph and Logghe, Karen and Mels, Saskia and Demulier, Laurent and Campens, Laurence and Goossens, Eva and De Backer, Julie}},
  issn         = {{0738-3991}},
  journal      = {{PATIENT EDUCATION AND COUNSELING}},
  keywords     = {{General Medicine,Transition to adult care Chronic Disease,Transition Program,Transitional Care,Congenital,Heart defects}},
  language     = {{eng}},
  pages        = {{10}},
  publisher    = {{Elsevier BV}},
  title        = {{Evaluation of a nurse-led multi-component transition program for adolescents with congenital heart disease}},
  url          = {{http://doi.org/10.1016/j.pec.2023.108028}},
  volume       = {{118}},
  year         = {{2024}},
}

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