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Care and support for elder people with intellectual disabilities beyond the pursuit of ageing 'in place' : towards constructing a space to (be)long

Tineke Schiettecat (UGent) , Jorrit Campens, Griet Roets (UGent) , Nico De Witte, Joan Lesseliers and Ilse Goethals
(2024) EUROPEAN JOURNAL OF SOCIAL WORK. 27(5). p.1020-1032
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Abstract
Whereas population ageing has been a much debated issue over the last decades, the political and scientific awareness of the longevity of adults with intellectual disabilities is considered relatively new. When the situations of older people with intellectual disabilities are coming into focus, attention has especially been drawn to medical aspects or to expected challenges of their ageing for health and social service providers. In that vein, a prominent yet rather wicked issue has been the question whether either disability care or elderly care services are the right place to meet their needs. This article discusses findings of a qualitative research study that aimed to reconstruct and investigate 10 care trajectories of ageing people with intellectual disabilities. Based on open interviews with the individuals themselves and with significant others from their formal and informal networks, we identified mechanisms in society that allow or deny older people with intellectual disabilities access to certain care settings or welfare provision. Moreover, we discovered concerns, interests and aspirations that are often left unseen. This shows the necessity to go beyond the debate of ‘ageing in (or out of) place’, and challenges us to create opportunities and strategies to create ‘a space to be(long)’.
Terwijl de vergrijzing van de algemene bevolking de afgelopen decennia een gekend onderwerp is van maatschappelijk debat, is het politieke en wetenschappelijke bewustzijn van de stijgende levensverwachting van volwassenen met verstandelijke beperkingen relatief nieuw. Wanneer de situatie van oudere personen met verstandelijke beperkingen onder de aandacht komt, wordt de focus vooral gelegd op medische aspecten of op verwachte uitdagingen van hun veroudering voor de gezondheidszorg en sociale dienstverlening. Een prominente, maar complexe kwestie in deze context is de vraag of eerder de ouderenzorg ofwel de gehandicaptenzorg het best geschikt is om aan hun behoeften te voldoen. Dit artikel bespreekt de bevindingen van een kwalitatief onderzoek waarin de zorgtrajecten van 10 ouder wordende personen met verstandelijke beperkingen gereconstrueerd en onderzocht werden. Op basis van open interviews met de betrokkenen zelf en met relevante actoren uit hun formele en informele netwerk, identificeerden we mechanismen in de samenleving die ouderen met verstandelijke beperkingen toegang geven of ontzeggen tot bepaalde zorginstellingen of welzijnsvoorzieningen. Bovendien ontdekten we bekommernissen, interesses en aspiraties die veelal onbelicht blijven. Dit toont de noodzaak om voorbij te gaan aan het debat over toegang krijgen tot een bestaande plaats, en daagt ons uit om op zoek te gaan naar mogelijkheden en strategieen om een plaats te creeren om te bestaan, ook op oudere leeftijd.
Keywords
Quality of life, belonging, intellectual disabilities, elderly, ageing, in place, kwaliteit van leven, erbij horen, verstandelijke beperking, ouderen, ter plaatse ouder worden, POLICY, RELOCATION

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Citation

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MLA
Schiettecat, Tineke, et al. “Care and Support for Elder People with Intellectual Disabilities beyond the Pursuit of Ageing ’in Place’ : Towards Constructing a Space to (Be)Long.” EUROPEAN JOURNAL OF SOCIAL WORK, vol. 27, no. 5, 2024, pp. 1020–32, doi:10.1080/13691457.2023.2257004.
APA
Schiettecat, T., Campens, J., Roets, G., De Witte, N., Lesseliers, J., & Goethals, I. (2024). Care and support for elder people with intellectual disabilities beyond the pursuit of ageing ’in place’ : towards constructing a space to (be)long. EUROPEAN JOURNAL OF SOCIAL WORK, 27(5), 1020–1032. https://doi.org/10.1080/13691457.2023.2257004
Chicago author-date
Schiettecat, Tineke, Jorrit Campens, Griet Roets, Nico De Witte, Joan Lesseliers, and Ilse Goethals. 2024. “Care and Support for Elder People with Intellectual Disabilities beyond the Pursuit of Ageing ’in Place’ : Towards Constructing a Space to (Be)Long.” EUROPEAN JOURNAL OF SOCIAL WORK 27 (5): 1020–32. https://doi.org/10.1080/13691457.2023.2257004.
Chicago author-date (all authors)
Schiettecat, Tineke, Jorrit Campens, Griet Roets, Nico De Witte, Joan Lesseliers, and Ilse Goethals. 2024. “Care and Support for Elder People with Intellectual Disabilities beyond the Pursuit of Ageing ’in Place’ : Towards Constructing a Space to (Be)Long.” EUROPEAN JOURNAL OF SOCIAL WORK 27 (5): 1020–1032. doi:10.1080/13691457.2023.2257004.
Vancouver
1.
Schiettecat T, Campens J, Roets G, De Witte N, Lesseliers J, Goethals I. Care and support for elder people with intellectual disabilities beyond the pursuit of ageing ’in place’ : towards constructing a space to (be)long. EUROPEAN JOURNAL OF SOCIAL WORK. 2024;27(5):1020–32.
IEEE
[1]
T. Schiettecat, J. Campens, G. Roets, N. De Witte, J. Lesseliers, and I. Goethals, “Care and support for elder people with intellectual disabilities beyond the pursuit of ageing ’in place’ : towards constructing a space to (be)long,” EUROPEAN JOURNAL OF SOCIAL WORK, vol. 27, no. 5, pp. 1020–1032, 2024.
@article{01HD6HP2J96X67AK4N36G5618V,
  abstract     = {{Whereas population ageing has been a much debated issue over the last decades, the political and scientific awareness of the longevity of adults with intellectual disabilities is considered relatively new. When the situations of older people with intellectual disabilities are coming into focus, attention has especially been drawn to medical aspects or to expected challenges of their ageing for health and social service providers. In that vein, a prominent yet rather wicked issue has been the question whether either disability care or elderly care services are the right place to meet their needs.
This article discusses findings of a qualitative research study that aimed to reconstruct and investigate 10 care trajectories of ageing people with intellectual disabilities. Based on open interviews with the individuals themselves and with significant others from their formal and informal networks, we identified mechanisms in society that allow or deny older people with intellectual disabilities access to certain care settings or welfare provision. Moreover, we discovered concerns, interests and aspirations that are often left unseen. This shows the necessity to go beyond the debate of ‘ageing in (or out of) place’, and challenges us to create opportunities and strategies to create ‘a space to be(long)’.}},
  author       = {{Schiettecat, Tineke and Campens, Jorrit and Roets, Griet and De Witte, Nico and Lesseliers, Joan and Goethals, Ilse}},
  issn         = {{1369-1457}},
  journal      = {{EUROPEAN JOURNAL OF SOCIAL WORK}},
  keywords     = {{Quality of life,belonging,intellectual disabilities,elderly,ageing,in place,kwaliteit van leven,erbij horen,verstandelijke beperking,ouderen,ter plaatse ouder worden,POLICY,RELOCATION}},
  language     = {{eng}},
  number       = {{5}},
  pages        = {{1020--1032}},
  title        = {{Care and support for elder people with intellectual disabilities beyond the pursuit of ageing 'in place' : towards constructing a space to (be)long}},
  url          = {{http://doi.org/10.1080/13691457.2023.2257004}},
  volume       = {{27}},
  year         = {{2024}},
}
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