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Co-creating an intervention to promote physical activity in adolescents with intellectual disabilities : lessons learned within the Move it, Move ID!-project

Laura Maenhout (UGent) , Maïté Verloigne (UGent) , Deborah Cairns, Greet Cardon (UGent) , Geert Crombez (UGent) , Craig Melville, Geert Van Hove (UGent) and Sofie Compernolle (UGent)
(2023) RESEARCH INVOLVEMENT AND ENGAGEMENT. 9(1).
Author
Organization
Project
Abstract
Background Co-creation is a method to develop acceptable, contextually appropriate and potentially more effective interventions. Adolescents with intellectual disabilities (ID) seldomly participate in research and program development due to the assumption that they lack the capacity to understand and discuss the related topics. Objective This study describes reflections on a co-creation process with adolescents with ID from the point of view of the researchers in developing an intervention to increase physical activity. It was the aim to highlight elements that must be considered when implementing co-creation and consequently formulate important lessons learned. Methods Twenty-three adolescents (14–22 y) with mild to moderate ID participated in six co-creation sessions at their school. The objectives and working methods in each session are described. Inductive thematic analysis was conducted on the researchers' reflection forms, which were completed after each session. Results Seven main themes could be distinguished from the data: experiences related to assistance (i.e., teacher presence) during sessions, the importance of building rapport, co-decision making power, the impact of different group dynamics, the relevance of adapted questioning, the influence of co-creative working methods and required characteristics of a co-creation researcher. Conclusion Seven lessons learned were formulated when preparing and conducting co-creation with adolescents with ID. Innovative, concrete (non-abstract) and creative working methods are highly needed. Describing the entire process transparently could be a first step to turn co-creative research into an evidence-based methodology.
Keywords
General Health Professions, Health (social science), Co-creation, Intervention, Physical activity, Adolescents, Intellectual disabilities, Patient and public involvement, CHILDREN, PEOPLE, YOUTH, BARRIERS, HEALTH, METAANALYSIS, INDIVIDUALS, WALKING, ADULTS, LIFE

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MLA
Maenhout, Laura, et al. “Co-Creating an Intervention to Promote Physical Activity in Adolescents with Intellectual Disabilities : Lessons Learned within the Move It, Move ID!-Project.” RESEARCH INVOLVEMENT AND ENGAGEMENT, vol. 9, no. 1, 2023, doi:10.1186/s40900-023-00420-x.
APA
Maenhout, L., Verloigne, M., Cairns, D., Cardon, G., Crombez, G., Melville, C., … Compernolle, S. (2023). Co-creating an intervention to promote physical activity in adolescents with intellectual disabilities : lessons learned within the Move it, Move ID!-project. RESEARCH INVOLVEMENT AND ENGAGEMENT, 9(1). https://doi.org/10.1186/s40900-023-00420-x
Chicago author-date
Maenhout, Laura, Maïté Verloigne, Deborah Cairns, Greet Cardon, Geert Crombez, Craig Melville, Geert Van Hove, and Sofie Compernolle. 2023. “Co-Creating an Intervention to Promote Physical Activity in Adolescents with Intellectual Disabilities : Lessons Learned within the Move It, Move ID!-Project.” RESEARCH INVOLVEMENT AND ENGAGEMENT 9 (1). https://doi.org/10.1186/s40900-023-00420-x.
Chicago author-date (all authors)
Maenhout, Laura, Maïté Verloigne, Deborah Cairns, Greet Cardon, Geert Crombez, Craig Melville, Geert Van Hove, and Sofie Compernolle. 2023. “Co-Creating an Intervention to Promote Physical Activity in Adolescents with Intellectual Disabilities : Lessons Learned within the Move It, Move ID!-Project.” RESEARCH INVOLVEMENT AND ENGAGEMENT 9 (1). doi:10.1186/s40900-023-00420-x.
Vancouver
1.
Maenhout L, Verloigne M, Cairns D, Cardon G, Crombez G, Melville C, et al. Co-creating an intervention to promote physical activity in adolescents with intellectual disabilities : lessons learned within the Move it, Move ID!-project. RESEARCH INVOLVEMENT AND ENGAGEMENT. 2023;9(1).
IEEE
[1]
L. Maenhout et al., “Co-creating an intervention to promote physical activity in adolescents with intellectual disabilities : lessons learned within the Move it, Move ID!-project,” RESEARCH INVOLVEMENT AND ENGAGEMENT, vol. 9, no. 1, 2023.
@article{01GW7FHR41JM2TT0Z1YB9M5FNE,
  abstract     = {{Background
Co-creation is a method to develop acceptable, contextually appropriate and potentially more effective interventions. Adolescents with intellectual disabilities (ID) seldomly participate in research and program development due to the assumption that they lack the capacity to understand and discuss the related topics.

Objective
This study describes reflections on a co-creation process with adolescents with ID from the point of view of the researchers in developing an intervention to increase physical activity. It was the aim to highlight elements that must be considered when implementing co-creation and consequently formulate important lessons learned.

Methods
Twenty-three adolescents (14–22 y) with mild to moderate ID participated in six co-creation sessions at their school. The objectives and working methods in each session are described. Inductive thematic analysis was conducted on the researchers' reflection forms, which were completed after each session.

Results
Seven main themes could be distinguished from the data: experiences related to assistance (i.e., teacher presence) during sessions, the importance of building rapport, co-decision making power, the impact of different group dynamics, the relevance of adapted questioning, the influence of co-creative working methods and required characteristics of a co-creation researcher.

Conclusion
Seven lessons learned were formulated when preparing and conducting co-creation with adolescents with ID. Innovative, concrete (non-abstract) and creative working methods are highly needed. Describing the entire process transparently could be a first step to turn co-creative research into an evidence-based methodology.}},
  articleno    = {{10}},
  author       = {{Maenhout, Laura and Verloigne, Maïté and Cairns, Deborah and Cardon, Greet and Crombez, Geert and Melville, Craig and Van Hove, Geert and Compernolle, Sofie}},
  issn         = {{2056-7529}},
  journal      = {{RESEARCH INVOLVEMENT AND ENGAGEMENT}},
  keywords     = {{General Health Professions,Health (social science),Co-creation,Intervention,Physical activity,Adolescents,Intellectual disabilities,Patient and public involvement,CHILDREN,PEOPLE,YOUTH,BARRIERS,HEALTH,METAANALYSIS,INDIVIDUALS,WALKING,ADULTS,LIFE}},
  language     = {{eng}},
  number       = {{1}},
  pages        = {{16}},
  title        = {{Co-creating an intervention to promote physical activity in adolescents with intellectual disabilities : lessons learned within the Move it, Move ID!-project}},
  url          = {{http://doi.org/10.1186/s40900-023-00420-x}},
  volume       = {{9}},
  year         = {{2023}},
}
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