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Facial allograft donation : an interpretative phenomenological analysis of the experiences of family members

Anthony Verfaillie, Kim De Corte (UGent) , Hanna Van Parys (UGent) , Nathalie Roche (UGent) , Filip Stillaert (UGent) , Hubert Vermeersch (UGent) , Patrick Peeters (UGent) , Luc Colenbie (UGent) , Jan De Cubber, Frans De Roeck, et al.
(2023) JOURNAL OF CRANIOFACIAL SURGERY. 34(3). p.942-948
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Abstract
Facial allograft transplantation can be regarded as a particular and complex type of donation because of its perceptibility and the importance of the face as an identity characteristic. As research on this topic is currently lacking, the objective of this study is to explore the experiences of the family members of the donor in facial allograft donation. In-depth, semi-structured interviews were conducted separately with the donor's family members and analyzed using interpretative phenomenological analysis. Six themes were identified: (1) Contrasting facial donation to that of more commonly donated organs; (2) Consenting to facial donation; (3) Expectations towards the recipient of the facial graft; (4) Expectations and consequences of restoration of the donor's face; (5) Relationship with the medical team during the process; and (6) Media attention. The findings of our study help to better support donor families through the facial donation process and to improve facial transplantation procedures.
Keywords
General Medicine, Otorhinolaryngology, Surgery, family members' experiences, interpretative phenomenological analysis, face transplantation

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Citation

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MLA
Verfaillie, Anthony, et al. “Facial Allograft Donation : An Interpretative Phenomenological Analysis of the Experiences of Family Members.” JOURNAL OF CRANIOFACIAL SURGERY, vol. 34, no. 3, Ovid Technologies (Wolters Kluwer Health), 2023, pp. 942–48, doi:10.1097/scs.0000000000009156.
APA
Verfaillie, A., De Corte, K., Van Parys, H., Roche, N., Stillaert, F., Vermeersch, H., … Lemmens, G. (2023). Facial allograft donation : an interpretative phenomenological analysis of the experiences of family members. JOURNAL OF CRANIOFACIAL SURGERY, 34(3), 942–948. https://doi.org/10.1097/scs.0000000000009156
Chicago author-date
Verfaillie, Anthony, Kim De Corte, Hanna Van Parys, Nathalie Roche, Filip Stillaert, Hubert Vermeersch, Patrick Peeters, et al. 2023. “Facial Allograft Donation : An Interpretative Phenomenological Analysis of the Experiences of Family Members.” JOURNAL OF CRANIOFACIAL SURGERY 34 (3): 942–48. https://doi.org/10.1097/scs.0000000000009156.
Chicago author-date (all authors)
Verfaillie, Anthony, Kim De Corte, Hanna Van Parys, Nathalie Roche, Filip Stillaert, Hubert Vermeersch, Patrick Peeters, Luc Colenbie, Jan De Cubber, Frans De Roeck, Phillip Blondeel, and Gilbert Lemmens. 2023. “Facial Allograft Donation : An Interpretative Phenomenological Analysis of the Experiences of Family Members.” JOURNAL OF CRANIOFACIAL SURGERY 34 (3): 942–948. doi:10.1097/scs.0000000000009156.
Vancouver
1.
Verfaillie A, De Corte K, Van Parys H, Roche N, Stillaert F, Vermeersch H, et al. Facial allograft donation : an interpretative phenomenological analysis of the experiences of family members. JOURNAL OF CRANIOFACIAL SURGERY. 2023;34(3):942–8.
IEEE
[1]
A. Verfaillie et al., “Facial allograft donation : an interpretative phenomenological analysis of the experiences of family members,” JOURNAL OF CRANIOFACIAL SURGERY, vol. 34, no. 3, pp. 942–948, 2023.
@article{01GTXSDGQ1VAKXVKV6CMSP98M0,
  abstract     = {{Facial allograft transplantation can be regarded as a particular and complex type of donation because of its perceptibility and the importance of the face as an identity characteristic. As research on this topic is currently lacking, the objective of this study is to explore the experiences of the family members of the donor in facial allograft donation. In-depth, semi-structured interviews were conducted separately with the donor's family members and analyzed using interpretative phenomenological analysis. Six themes were identified: (1) Contrasting facial donation to that of more commonly donated organs; (2) Consenting to facial donation; (3) Expectations towards the recipient of the facial graft; (4) Expectations and consequences of restoration of the donor's face; (5) Relationship with the medical team during the process; and (6) Media attention. The findings of our study help to better support donor families through the facial donation process and to improve facial transplantation procedures.}},
  author       = {{Verfaillie, Anthony and De Corte, Kim and Van Parys, Hanna and Roche, Nathalie and Stillaert, Filip and Vermeersch, Hubert and Peeters, Patrick and Colenbie, Luc and De Cubber, Jan and De Roeck, Frans and Blondeel, Phillip and Lemmens, Gilbert}},
  issn         = {{1049-2275}},
  journal      = {{JOURNAL OF CRANIOFACIAL SURGERY}},
  keywords     = {{General Medicine,Otorhinolaryngology,Surgery,family members' experiences,interpretative phenomenological analysis,face transplantation}},
  language     = {{eng}},
  number       = {{3}},
  pages        = {{942--948}},
  publisher    = {{Ovid Technologies (Wolters Kluwer Health)}},
  title        = {{Facial allograft donation : an interpretative phenomenological analysis of the experiences of family members}},
  url          = {{http://doi.org/10.1097/scs.0000000000009156}},
  volume       = {{34}},
  year         = {{2023}},
}
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