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Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey

Orphé Matthys (UGent) , Sigrid Dierickx (UGent) , Luc Deliens (UGent) , Lore Lapeire (UGent) , Peter Hudson, Chantal Van Audenhove, Aline De Vleminck (UGent) and Joachim Cohen (UGent)
(2023) PATIENT EDUCATION AND COUNSELING. 110.
Author
Organization
Project
  • 179I06715
  • DIAdIC (DIAdIC - Evaluation of Dyadic Psychoeducational Interventions for People with Advanced Cancer and their Informal Caregivers: An international randomized controlled trial)
Abstract
Objective: To investigate pre-bereavement collaboration with healthcare professionals and its association with emotional well-being of family caregivers of people with serious illness post-bereavement.Methods: Population-based cross-sectional survey of bereaved family caregivers of people with serious illness (N = 3000) who died two to six months before the sample was drawn (November 2019), identified through three sickness funds in Belgium.Results: Response rate was 55%. As measured by the Positive and Negative Affect Schedule (PANAS), family caregivers scored lower on positive affect (PA) and higher on negative affect (NA) compared to a normative sample. Most family caregivers evaluated the pre-bereavement collaboration with healthcare professionals positively. Family caregivers' evaluation of collaboration with healthcare professionals pre-bereavement was positively associated with PA and negatively with NA, also when controlling for confounding effects of socio-demographic and clinical characteristics of the bereaved family caregiver and the deceased person.Conclusion: There is a positive association between perceived quality of collaboration at the end of life between healthcare professionals and family caregivers and post-bereavement emotional well-being of family caregivers. Practice implications: Our findings suggest the pertinence of attention from healthcare professionals to effective collaboration with family caregivers.
Keywords
General Medicine, Bereavement, Emotional well-being, Healthcare professionals, Collaboration, Serious illness, Family caregivers, EoLC

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Citation

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MLA
Matthys, Orphé, et al. “Is Pre-Bereavement Collaboration between Family Caregivers and Healthcare Professionals Associated with Post-Bereavement Emotional Well-Being? A Population-Based Survey.” PATIENT EDUCATION AND COUNSELING, vol. 110, Elsevier BV, 2023, doi:10.1016/j.pec.2023.107654.
APA
Matthys, O., Dierickx, S., Deliens, L., Lapeire, L., Hudson, P., Van Audenhove, C., … Cohen, J. (2023). Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey. PATIENT EDUCATION AND COUNSELING, 110. https://doi.org/10.1016/j.pec.2023.107654
Chicago author-date
Matthys, Orphé, Sigrid Dierickx, Luc Deliens, Lore Lapeire, Peter Hudson, Chantal Van Audenhove, Aline De Vleminck, and Joachim Cohen. 2023. “Is Pre-Bereavement Collaboration between Family Caregivers and Healthcare Professionals Associated with Post-Bereavement Emotional Well-Being? A Population-Based Survey.” PATIENT EDUCATION AND COUNSELING 110. https://doi.org/10.1016/j.pec.2023.107654.
Chicago author-date (all authors)
Matthys, Orphé, Sigrid Dierickx, Luc Deliens, Lore Lapeire, Peter Hudson, Chantal Van Audenhove, Aline De Vleminck, and Joachim Cohen. 2023. “Is Pre-Bereavement Collaboration between Family Caregivers and Healthcare Professionals Associated with Post-Bereavement Emotional Well-Being? A Population-Based Survey.” PATIENT EDUCATION AND COUNSELING 110. doi:10.1016/j.pec.2023.107654.
Vancouver
1.
Matthys O, Dierickx S, Deliens L, Lapeire L, Hudson P, Van Audenhove C, et al. Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey. PATIENT EDUCATION AND COUNSELING. 2023;110.
IEEE
[1]
O. Matthys et al., “Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey,” PATIENT EDUCATION AND COUNSELING, vol. 110, 2023.
@article{01GTV7RSKD5PJCQFT03RVKB65E,
  abstract     = {{Objective: To investigate pre-bereavement collaboration with healthcare professionals and its association with emotional well-being of family caregivers of people with serious illness post-bereavement.Methods: Population-based cross-sectional survey of bereaved family caregivers of people with serious illness (N = 3000) who died two to six months before the sample was drawn (November 2019), identified through three sickness funds in Belgium.Results: Response rate was 55%. As measured by the Positive and Negative Affect Schedule (PANAS), family caregivers scored lower on positive affect (PA) and higher on negative affect (NA) compared to a normative sample. Most family caregivers evaluated the pre-bereavement collaboration with healthcare professionals positively. Family caregivers' evaluation of collaboration with healthcare professionals pre-bereavement was positively associated with PA and negatively with NA, also when controlling for confounding effects of socio-demographic and clinical characteristics of the bereaved family caregiver and the deceased person.Conclusion: There is a positive association between perceived quality of collaboration at the end of life between healthcare professionals and family caregivers and post-bereavement emotional well-being of family caregivers. Practice implications: Our findings suggest the pertinence of attention from healthcare professionals to effective collaboration with family caregivers.}},
  articleno    = {{107654}},
  author       = {{Matthys, Orphé and Dierickx, Sigrid and Deliens, Luc and Lapeire, Lore and Hudson, Peter and Van Audenhove, Chantal and De Vleminck, Aline and Cohen, Joachim}},
  issn         = {{0738-3991}},
  journal      = {{PATIENT EDUCATION AND COUNSELING}},
  keywords     = {{General Medicine,Bereavement,Emotional well-being,Healthcare professionals,Collaboration,Serious illness,Family caregivers,EoLC}},
  language     = {{eng}},
  pages        = {{8}},
  publisher    = {{Elsevier BV}},
  title        = {{Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey}},
  url          = {{http://doi.org/10.1016/j.pec.2023.107654}},
  volume       = {{110}},
  year         = {{2023}},
}
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