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Researching compassionate communities : identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives

(2023) PALLIATIVE MEDICINE. 37(2). p.291-301
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Abstract
Background: Compassionate Communities have been put forward as a new model for community-based palliative care to positively impact the health and wellbeing of those experiencing challenges of serious illness, death, dying, and loss. Despite the growing international movement to develop these public health initiatives to end-of-life care, only a handful of initiatives have undergone some form of evaluation. Aim: To provide guidance on designing evaluation research by identifying theoretical frameworks to understand the development, implementation, and underlying mechanisms of Compassionate Communities. Methods: To identify suitable theoretical frameworks for the study of Compassionate Communities, we applied two steps. The first step examined the characteristics of Compassionate Communities and translated them into assessment criteria for the selection of theoretical frameworks. The second step consisted of applying the identified assessment criteria to a list of widely used and highly cited theoretical frameworks. Results: Three well-established theoretical frameworks were identified as being most suitable to study the development, implementation, and underlying mechanisms of Compassionate Communities: The Consolidated Framework for Implementation Research (CFIR), the integrated-Promoting Action on Research Implementation in Health Services framework (i-PARIHS), and the Extended Normalization Process Theory (ENPT). Conclusions: The article supports and encourages the use of theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. The complementary use of two determinant frameworks and an implementation theory provides theoretical grounding to gain rich insights into the emergent and shifting interplays between agency, social processes, and contextual factors that shape the development and implementation of Compassionate Communities.
Keywords
Anesthesiology and Pain Medicine, General Medicine, evaluation methodology, implementation science, compassionate communities, palliative care, Public health

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Citation

Please use this url to cite or link to this publication:

MLA
Bakelants, Hanne, et al. “Researching Compassionate Communities : Identifying Theoretical Frameworks to Evaluate the Complex Processes behind Public Health Palliative Care Initiatives.” PALLIATIVE MEDICINE, vol. 37, no. 2, 2023, pp. 291–301, doi:10.1177/02692163221146589.
APA
Bakelants, H., Vanderstichelen, S., Chambaere, K., Van Droogenbroeck, F., De Donder, L., Deliens, L., … Cohen, J. (2023). Researching compassionate communities : identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. PALLIATIVE MEDICINE, 37(2), 291–301. https://doi.org/10.1177/02692163221146589
Chicago author-date
Bakelants, Hanne, Steven Vanderstichelen, Kenneth Chambaere, Filip Van Droogenbroeck, Liesbeth De Donder, Luc Deliens, Sarah Dury, and Joachim Cohen. 2023. “Researching Compassionate Communities : Identifying Theoretical Frameworks to Evaluate the Complex Processes behind Public Health Palliative Care Initiatives.” PALLIATIVE MEDICINE 37 (2): 291–301. https://doi.org/10.1177/02692163221146589.
Chicago author-date (all authors)
Bakelants, Hanne, Steven Vanderstichelen, Kenneth Chambaere, Filip Van Droogenbroeck, Liesbeth De Donder, Luc Deliens, Sarah Dury, and Joachim Cohen. 2023. “Researching Compassionate Communities : Identifying Theoretical Frameworks to Evaluate the Complex Processes behind Public Health Palliative Care Initiatives.” PALLIATIVE MEDICINE 37 (2): 291–301. doi:10.1177/02692163221146589.
Vancouver
1.
Bakelants H, Vanderstichelen S, Chambaere K, Van Droogenbroeck F, De Donder L, Deliens L, et al. Researching compassionate communities : identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. PALLIATIVE MEDICINE. 2023;37(2):291–301.
IEEE
[1]
H. Bakelants et al., “Researching compassionate communities : identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives,” PALLIATIVE MEDICINE, vol. 37, no. 2, pp. 291–301, 2023.
@article{01GPJREQD8C43V2AD63N05RGQS,
  abstract     = {{Background: Compassionate Communities have been put forward as a new model for community-based palliative care to positively impact the health and wellbeing of those experiencing challenges of serious illness, death, dying, and loss. Despite the growing international movement to develop these public health initiatives to end-of-life care, only a handful of initiatives have undergone some form of evaluation. Aim: To provide guidance on designing evaluation research by identifying theoretical frameworks to understand the development, implementation, and underlying mechanisms of Compassionate Communities. Methods: To identify suitable theoretical frameworks for the study of Compassionate Communities, we applied two steps. The first step examined the characteristics of Compassionate Communities and translated them into assessment criteria for the selection of theoretical frameworks. The second step consisted of applying the identified assessment criteria to a list of widely used and highly cited theoretical frameworks. Results: Three well-established theoretical frameworks were identified as being most suitable to study the development, implementation, and underlying mechanisms of Compassionate Communities: The Consolidated Framework for Implementation Research (CFIR), the integrated-Promoting Action on Research Implementation in Health Services framework (i-PARIHS), and the Extended Normalization Process Theory (ENPT). Conclusions: The article supports and encourages the use of theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. The complementary use of two determinant frameworks and an implementation theory provides theoretical grounding to gain rich insights into the emergent and shifting interplays between agency, social processes, and contextual factors that shape the development and implementation of Compassionate Communities.

}},
  author       = {{Bakelants, Hanne and Vanderstichelen, Steven and Chambaere, Kenneth and Van Droogenbroeck, Filip and De Donder, Liesbeth and Deliens, Luc and Dury, Sarah and Cohen, Joachim}},
  issn         = {{0269-2163}},
  journal      = {{PALLIATIVE MEDICINE}},
  keywords     = {{Anesthesiology and Pain Medicine,General Medicine,evaluation methodology,implementation science,compassionate communities,palliative care,Public health}},
  language     = {{eng}},
  number       = {{2}},
  pages        = {{291--301}},
  title        = {{Researching compassionate communities : identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives}},
  url          = {{http://doi.org/10.1177/02692163221146589}},
  volume       = {{37}},
  year         = {{2023}},
}

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