Support from healthcare professionals in empowering family carers to discuss advance care planning : a population-based survey
- Author
- Isabel Vandenbogaerde, Joachim Cohen (UGent) , Hudson Peter, Van Audehove Chantal, Luc Deliens (UGent) and Aline De Vleminck (UGent)
- Organization
- Abstract
- Background: Family carers have a prominent role in end-of-life care for seriously ill persons. However, most of the Advance Care Planning literature is focused on the role of healthcare professionals. Aims: To investigate (1) what proportion of family carers discussed advance care planning with their relative and associated socio-demographic and clinical characteristics (2) what proportion received support from healthcare professionals for these conversations, (3) what type of support they received and (4) to what extent the type of support received was considered sufficient. Design/participants: Population-based cross-sectional survey in Belgium of bereaved family carers of persons with a serious chronic illness (N = 3000) who died 2-6 months before the sample was drawn, identified through three sickness funds. The survey explored support from healthcare professionals for family carers during the last 3 months of the patient's life. Results: Response rate was 55%. The proportion of family carers that engaged in an advance care planning conversation with their relative was 46.9%. Of these family carers, 78.1% received support from a healthcare professional, mostly by doing the advance care planning conversation together (53.8%). Of family carers receiving support from a healthcare professional, 57.4% deemed the support sufficient. Conclusion: Many family carers engage in advance care planning conversations with their dying relative. Healthcare professionals often support them by performing the advance care planning conversations together. More insight into how family carers can be supported to conduct these advance care planning conversations, both with and without involvement of healthcare professionals, is necessary.
- Keywords
- Anesthesiology and Pain Medicine, General Medicine, cross-sectional survey, healthcare professionals, advance care planning, serious illness, Family carers
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Citation
Please use this url to cite or link to this publication: http://hdl.handle.net/1854/LU-01GJZ8HFN09JC3K4GNA0G7ZRK1
- MLA
- Vandenbogaerde, Isabel, et al. “Support from Healthcare Professionals in Empowering Family Carers to Discuss Advance Care Planning : A Population-Based Survey.” PALLIATIVE MEDICINE, vol. 37, no. 5, 2023, pp. 719–29, doi:10.1177/02692163221135032.
- APA
- Vandenbogaerde, I., Cohen, J., Peter, H., Chantal, V. A., Deliens, L., & De Vleminck, A. (2023). Support from healthcare professionals in empowering family carers to discuss advance care planning : a population-based survey. PALLIATIVE MEDICINE, 37(5), 719–729. https://doi.org/10.1177/02692163221135032
- Chicago author-date
- Vandenbogaerde, Isabel, Joachim Cohen, Hudson Peter, Van Audehove Chantal, Luc Deliens, and Aline De Vleminck. 2023. “Support from Healthcare Professionals in Empowering Family Carers to Discuss Advance Care Planning : A Population-Based Survey.” PALLIATIVE MEDICINE 37 (5): 719–29. https://doi.org/10.1177/02692163221135032.
- Chicago author-date (all authors)
- Vandenbogaerde, Isabel, Joachim Cohen, Hudson Peter, Van Audehove Chantal, Luc Deliens, and Aline De Vleminck. 2023. “Support from Healthcare Professionals in Empowering Family Carers to Discuss Advance Care Planning : A Population-Based Survey.” PALLIATIVE MEDICINE 37 (5): 719–729. doi:10.1177/02692163221135032.
- Vancouver
- 1.Vandenbogaerde I, Cohen J, Peter H, Chantal VA, Deliens L, De Vleminck A. Support from healthcare professionals in empowering family carers to discuss advance care planning : a population-based survey. PALLIATIVE MEDICINE. 2023;37(5):719–29.
- IEEE
- [1]I. Vandenbogaerde, J. Cohen, H. Peter, V. A. Chantal, L. Deliens, and A. De Vleminck, “Support from healthcare professionals in empowering family carers to discuss advance care planning : a population-based survey,” PALLIATIVE MEDICINE, vol. 37, no. 5, pp. 719–729, 2023.
@article{01GJZ8HFN09JC3K4GNA0G7ZRK1, abstract = {{Background: Family carers have a prominent role in end-of-life care for seriously ill persons. However, most of the Advance Care Planning literature is focused on the role of healthcare professionals. Aims: To investigate (1) what proportion of family carers discussed advance care planning with their relative and associated socio-demographic and clinical characteristics (2) what proportion received support from healthcare professionals for these conversations, (3) what type of support they received and (4) to what extent the type of support received was considered sufficient. Design/participants: Population-based cross-sectional survey in Belgium of bereaved family carers of persons with a serious chronic illness (N = 3000) who died 2-6 months before the sample was drawn, identified through three sickness funds. The survey explored support from healthcare professionals for family carers during the last 3 months of the patient's life. Results: Response rate was 55%. The proportion of family carers that engaged in an advance care planning conversation with their relative was 46.9%. Of these family carers, 78.1% received support from a healthcare professional, mostly by doing the advance care planning conversation together (53.8%). Of family carers receiving support from a healthcare professional, 57.4% deemed the support sufficient. Conclusion: Many family carers engage in advance care planning conversations with their dying relative. Healthcare professionals often support them by performing the advance care planning conversations together. More insight into how family carers can be supported to conduct these advance care planning conversations, both with and without involvement of healthcare professionals, is necessary.}}, author = {{Vandenbogaerde, Isabel and Cohen, Joachim and Peter, Hudson and Chantal, Van Audehove and Deliens, Luc and De Vleminck, Aline}}, issn = {{0269-2163}}, journal = {{PALLIATIVE MEDICINE}}, keywords = {{Anesthesiology and Pain Medicine,General Medicine,cross-sectional survey,healthcare professionals,advance care planning,serious illness,Family carers}}, language = {{eng}}, number = {{5}}, pages = {{719--729}}, title = {{Support from healthcare professionals in empowering family carers to discuss advance care planning : a population-based survey}}, url = {{http://doi.org/10.1177/02692163221135032}}, volume = {{37}}, year = {{2023}}, }
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